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Critical concern

Disabled access train needs professionals' help to stay on track

By Barbara J. McKee
Tribune Columnist

May 17, 2005

Barbara J McKeeThere's potentially good news for the disabled getting access to specialized medical equipment that does not accommodate them.

Recently I was scheduled for magnetic resonance imaging. This test is vital for the diagnosis and treatment of many diseases and injuries. An MRI machine obtains a detailed image of the human body. The patient lies flat on a narrow table and is slid inside the machine, similar to putting a turkey in the oven. The device is open at either end, but inside it's a close fit with your face about 8 inches away from the machine. Some machines have a mirror set up so you can look at your feet, alleviating the feelings of claustrophobia.

This time I had a problem. I have contractures of my hamstrings, which are tighter than violin strings. Sitting for years in a wheelchair causes this condition. I've had them cut and lengthened over the years, but they revert back about a year later.

During the preparation, technicians propped me up with sponges, pillows and strapped my legs down as far as they could go. But I couldn't fit into the machine. My legs just wouldn't straighten out.

This problem of disability access to medical equipment is a critical issue in the health care industry that only now is being recognized and addressed. The Rehabilitation Engineering Research Center has been given the task of assessing the issue with funding by National Institute on Disability and Rehabilitation Research of the U.S. Department of Education. They have sent out surveys via e-mail and letters to thousands of hospitals and health care companies asking what problems the health care industry is facing with disability access.

The center's inquiry, called Accessible Medical Instrumentation, is guided by the premise that all persons should have access to health care instrumentation and services and to employment in the health care professions regardless of disability.

The goals of the inquiry are to increase knowledge of, access to and utilization of health care instrumentation and services by individuals with disabilities; increase awareness of and access to employment in the health care professions by individuals with disabilities; and serve as a national center of excellence for this priority area.

The center is taking a stance because the problems are not just "what if" scenarios for the future. These problems are growing partly because of demographics. Many baby boomers want to keep working. With aging comes disability in many forms.

Without redesign of machines - that have not changed, some since their creation - many disabled baby boomers will face access problems as some are faced with early retirement or living off government disability income. With all the budget cuts, this issue could be the sleeping giant that threatens to affect nation's already high medical care costs, if ignored.

The center's Web site, www.rerc-ami.org, is up and running, and waiting for the health care industry to help avoid the oncoming train wreck of failing to provide critical access to fundamental medical care or diagnostic equipment that needs to be redesigned or modified to accommodate the disabled.

I urge all health care professionals to visit the Web site, participate in the surveys and keep the disabled access train on track.

You can e-mail Barbara J. McKee at chairgrrl@chairgrrl.com. Her column runs on Tuesdays.

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